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Tag Archives: Sensory processing disorder

Planes, Buggies, and Chicken Nuggets – Part I

PLANES

Disney Planes Fire & Rescue

I returned from Bogotá with a pesky scratchy throat. But more on that later.

At the end of every summer, my husband flies to Brazil to escort my stepdaughter back to the States. It is a law in Brazil that children may not leave the country with one parent without the legal permission of the other parent. So every year my husband flies all night to Brazil, collects my stepdaughter, and returns that same night to come back home.

He would be leaving Friday night and they would return together Sunday morning. I would be by myself with the kids for the weekend so I planned some fun things for us to do.

After the quasi-disastrous first experience at the movie theater a couple weeks ago, some people from an online support group for sensory processing disorder told me about “sensory friendly movies” at AMC. There was one scheduled for this weekend so I thought that would be a perfect distraction while daddy was out of town.

These special showings are infrequent and only a couple of theaters in our metro area offer them.  This Saturday’s feature would be the new Disney Planes movie. My kids never saw any of the Cars movies nor the first Planes movie. I whet their appetite by showing them the trailer of the new movies on the computer at home before we left.

My daughter asked to take the headphones with us despite the fact that I explained to her ahead of time that this movie would not be too loud like the last one.

We arrived at the theater in plenty of time before the movie was to start. I found booster seats to put in the chairs. (I had never seen this before. I wish it had been available at the dollar theater we went to a couple weeks ago).

Planes movie pic sensory

We stood in line to order a medium popcorn and some Bunch a Crunch. I had brought a couple of plastic containers to divvy out the popcorn for them. Passing around the popcorn bag doesn’t work with small children.

The sensory friendly movies had been advertised as something where kids could feel free to get up and move around, as they needed. The lights would be kept up during the movie. The volume would be kept down low.

I had some expectations for what this experience would be like. I expected to see lots of autistic kids in the theater. I expected it to be noisy and was prepared for potential meltdowns.

There was just one noisy kid in the theater that morning. Only one kid burst into tears and demanded to be taken home.

My kid.

I ran into some of the theater staff as we made our way to the potty during the previews. My daughter still had the headphones on her ears and  tears streamed down her cheeks.

The staff apologized and said that the trailers were always louder than the actual movie. They explained that they had turned down the volume as much as possible. I told them I was surprised at my daughter’s reaction. I really was.

My daughter has never had enough checkmarks in the right categories to be diagnosed with autism though she showed definite warning signs as a toddler. I am well aware that autism is always accompanied by SPD (though the opposite is not always the case).

I expected to see other kids acting out in the theater, not mine.

I could have taken the kids home at that moment, but I chose not to for two reasons:

1. I felt that my daughter should watch at least the first 15 minutes of the movie before giving up on it.
2. I felt it would be unfair to my son to deny him the experience.

I have witnessed my daughter exposed to much higher levels of sound without incident many times. I believe that she is at a place where the anticipation of noise is far worse for her than the actual noise. She is still highly sensitive to noise; however, I am familiar enough with her threshold to know about how much noise she can tolerate.

She eventually calmed down and settled in enough to watch the movie even without headphones.

I had expected there to be drama in the movie theater (in the seats, not on the movie screen) from the other kids. However, we were the ones providing the most in-seat entertainment. My kids talked the loudest, cried the most, and moved around the most. I started to think I was the “bad mom” in the crowd among the eight families there.

After finally making it to the end of the movie that didn’t really hold my kids attention, we headed to McDonald’s to get some food. It was already their naptime so I just went through the drive-thru. For my typical kid, I ordered a happy meal with all the usual fixin’s knowing he would eat every bit. For my SPD kid, I ordered just four chicken nuggets.

The movie theater was about a 25-minute drive from our house. My youngest fell asleep in the car. (You parents of young kids know what that means). By the time we arrived home with our food, this little kiddo was rested and energized.

I went to get our food out of the bag at home. There was only a happy meal. No separate order of chicken nuggets. I was already feeling tired and testy from the events of the day. I said “stupid McDonald’s” under my breath. OK, maybe I said it out loud.

I checked my receipt and it showed I had indeed paid for it. I grumbled because I always make the same order for my kids and on more than one occasion, they have forgotten the second order of nuggets.

I called the store and the woman I spoke with immediately apologized for the mishap. She gave me a credit for a 10-piece nuggets the next time we came in. I had to take a moment and tell God that I trusted Him to take care of us despite the food shortage. It was too late to drive all the way back there.

I divided the nuggets between the two kids. My youngest proceeded to eat everything but the nuggets. I was somewhat in shock. I was able to give the other two to my daughter.

As expected, my little boy never fell asleep again after his restorative catnap in the car.

Since they were both awake, it was time to do what I had been dreading all weekend. I hadn’t had time to grocery shop before my husband went out of town and we were totally out of food so now was the time.

I debated a lot over where to grocery shop. I have been going to Walmart in order to keep the grocery bill down for our family of five, however going by myself with two little kids makes things much more complicated.

Publix is the most expensive regular grocery store we have here. (I’m not counting specialty stores like Whole Foods). However, there are some real benefits to shopping there. It is a much more kid-friendly (read: parent-friendly) experience. They have plenty of shopping carts designed to hold more than one kid and they always take your groceries out to the car for you.

I decided in the end that I would brave Walmart. I had a talk with both the kids before we left, explaining to them that they would have to take turns sitting in the cart. By the time we got to the store, they were prepared for this. My little one stayed in the cart while the older one walked. I parked right next to the cart return so that would be easier.

I remembered at some point during our shopping trip that church was at 7pm that night. Oh boy. How was I going to manage that? I was exhausted and hadn’t had time to get anything ready for my stepdaughter’s return. There was lots of cleaning to do. I finally decided I would need to attend one of the Sunday services instead.

That evening as I was preparing dinner for them, I began the vigil to see if my husband and stepdaughter would get seats on their flight back to the U.S. They were flying standby. The flight was somewhat oversold in coach but still had seats in first class. I had been confident they would have no problems.

Anyone who is in the airline family knows how nerve-racking the vigil is, especially for travel overseas. The stakes are higher. I can make it by myself with the kids for a few days; however, my husband has a job waiting for him.

Fortunately, they have free Wi-Fi in their airports in Brazil so we were able to keep in touch.

They were bumping paying passengers for the flight. The two of them stayed there until the very end just in case a miracle happened. After failing to get on the flight, they returned to his aunt’s house to spend one more night. Things didn’t look any better for the next day’s flight.

I thought to myself that at least I would sleep better that night. I never sleep well when my family is on an airplane flying over the ocean.

Stay tuned for Part II tomorrow.

Note: My self-hosted website is under construction. More details to come!

 
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Posted by on July 30, 2014 in Parenting

 

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Dinner, a movie, and a kidney stone

Rio-2-Movie-HD-Wallpaper_Vvallpaper.Net (1)

Rio 2 – 20th Century Fox

 

The kids and I have been working our way through our summer bucket list.  I was determined that this summer 2014 would be a fun one. And because I believe in saying things aloud and blessing verbally, I began blessing our summer long before it got here.

In case you haven’t read about it hear yet, I was ill for the latter half of last year and unable to do much of anything with the kids last summer.

One thing on our bucket list was to see the movie Rio 2. I waited for it to come to the dollar theater (which is now actually the $1.75 theater) and scheduled us to see it on a Tuesday (the day of the week when it is truly just a dollar).

Going to the movie theater with my kids was a big deal. Neither of them have ever been (they will be turning three and five soon). My five-year-old daughter has sensory processing disorder and had some learning delays so she took longer than most kids to enjoy a full-length movie.

We have the DVD for the original Rio movie at our house and the kids love to watch it repeatedly.

I had everything planned to a T. We were going to go to the 2:30pm show. I fed the kids lunch at 11am and put them down for their nap early. This part of the plan came off without a hitch. My son awoke from his nap at 1:30.

We got ready to go and left the house 40 minutes before show time.

Then we hit a snag.

Construction on the local main road caused a traffic standstill. I made a U-turn, and then followed the route less travelled given to me by my phone’s GPS to get to the theater. I made good time despite the setback and we arrived ten minutes before the movie started.

We had to park far from the movie theater (not a good sign). I shuffled the kids out of the car and had to arrange everything I was carrying (purse, diaper bag, and golf umbrella because of the forecast) to be able to hold two little hands in that busy parking lot.

I saw lots of other families with kids headed towards the entrance.

We finally made it through the doors when I could hear the concessionaires shouting “Rio 2-sold out!”

I felt tears well up in my eyes. I had worked so hard to get to this point. It wasn’t just about getting a diaper bag ready and making sure my son had a nap before we left the house.

It was about overcoming a physical incapacitation that had left me unable to do things like this with them last summer.  It was about taking my kids to experience something they have never been able to experience before.

I could have burst into tears right then. The kids were very anxious and ready to watch the movie.

How would I explain to them the concept of “sold out”?

I herded the two of them over to the concession stand line, resolved to buy tickets for the next showing.

I would find something for them to do to kill time until we had to come back. The kids were hungry and I had not packed a snack (having counted on popcorn).

I used my GPS to find the closest Chick-fil-A and headed there. I explained to the kids in the car in the simplest terms possible that too many people wanted to see the movie at the same time as us so we would have to come back later.

As I drove into the parking lot of the restaurant, I was a little disappointed to see an outdoor playground there. It is the middle of July. In Georgia.

Oh well. We’ll just make the best of it.

My almost five year-old daughter’s main sensory issue is auditory. Loud noises bother her a lot. She began having meltdowns in Chick-fil-A bathrooms as a young baby due to the loudness of the toilet flushing.

To add to the fun today, my body decided to start passing a kidney stone. They run in my family and I found out last year through imaging tests that I have them. However, I didn’t start passing them until this year.

I now know how to recognize the signs that I am passing one and could feel the great discomfort in my bladder all day today. If this event had not been so well planned out, I would have cancelled.

Passing a kidney stone for me means frequent trips to the loo, so there we were.

My daughter kept her hands over her ears the whole time we were in the ladies’ room. I assured her that this toilet didn’t flush by itself so she could relax a little and I would tell her when I was going to flush.

After eating some chicken and fries and playing for a while on the outdoor playground, we headed back to the movie theater almost a full hour before show time. I didn’t want to go through the same stress of crowds and long lines that we had experienced at 2:30pm.

I had already bought the tickets for the 5 o’clock show so all we needed was to buy some popcorn and candy. We stood in line again. My kids were quite hyper and antsy. They were also getting on each other’s nerves.

We headed towards our theater about twenty minutes before show time.

My daughter already knew I had headphones for her. She needed them as soon as we walked in. Even the advertisements were bothering her ears.

I put the headphones on her, however she still complained. “It’s too loud! It’s too loud!”

Meanwhile her and my son are both clamoring for some of the popcorn and chocolate I just bought them. I alternate divvying out handfuls of Nestle buncha crunch and poured popcorn into two plastic containers I had brought with us.

It didn’t take long for one of those containers of popcorn to be poured out onto the floor (by my almost three year-old).

I chose a row of seats in the middle and all the way to the back. One brave person came and sat next to us. I warned her that she might hear my daughter complaining about the noise a few times.

There was another mom seated in front of us who had a few older kids with her.

An older couple came and sat in the row in front of us as well. It was only the previews; however, after hearing a few comments from my son, they decided to find other seats. J

My daughter was having a very difficult time with the noise (or the anticipation of it), so she came and sat on my lap. There she stayed for the rest of the movie, leaning back against me, hands covering the headphones that were covering her ears.

My son alternated between standing up and sitting on my other leg.

During a quiet time in the movie, my son all of a sudden yelled out “I wanna watch Jake!” referring to their favorite pirate show. A few people in the audience laughed. He was my little commentator during the whole movie.

My little boy had a major speech delay (similar to his older sister), and has had a language explosion recently. I have noticed that as we drive in the car somewhere, he loves to point out whatever things he knows the word to. “Truck!” “School bus!” “Railroad track!”

I knew it would be next to impossible to muzzle him during the whole movie so I tried to be affirming and occasionally said to him “Let’s whisper”.

When I looked at my watch and saw there was still 30 minutes left in the movie, I was ready to go home. I asked my son if he wanted to go home (I knew what my daughter’s answer would be). He said he wanted to stay and watch the movie. I said OK.

He then proceeded to repeat his desire multiple times and rather loudly for all to hear.

We made it all the way through the movie. Daughter on my left leg, son on my right, and a sea of popcorn crunched under my shoes on the floor.

I’m glad we got to have this experience. I’m glad we got to cross one more thing off our summer bucket list.

I think we’ll watch the next movie from the comfort of our home.

 
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Posted by on July 15, 2014 in Parenting

 

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